Plagiocephaly and brachycephaly have both been successfully treated with helmets for many years. Discover some treatment success stories below – simply click a child’s name from the list on the left to view their story.
Parent(s): Sarah and Peter
Cameron was born two weeks late and his head was down for a long time whilst his mother Sarah was pregnant, which she thinks may be the reason he got torticollis. His head shape was 'absolutely perfect' when he was born, but Sarah noticed on the first night she spent with him in hospital that he did not turn his head – she actually had to turn the cot round so she could see his face.
Sarah didn't think anything of it at the time and only began to take note when Cameron's head became an odd shape. She mentioned this to each midwife that came to see them, as well as to the health visitors and even the doctor – who felt Cameron's skull – and they all told her that there was nothing to worry about and that his head shape would return to normal. After nearly three months the family was finally referred to a physiotherapist, who was very useful in helping with exercises and repositioning: this did improve his head shape a little.
However, Cameron's head shape and ear alignment were still a cause for concern – so Sarah searched on the internet and discovered that there was actually something they could do about it. She posted her concerns about the lack of support in the UK on a plagiocephaly forum website in the USA and received a few responses from other British parents, who referred her to a specialist. Sarah emailed him immediately and was able to secure an appointment.
Cameron was measured at a severe 24mm misalignment by the specialist, and a cast was taken straight away. He was due to get his helmet on 6 March, and an update on his progress will be provided as soon as possible. Good luck Cameron!
Donate by text via JustTextGiving
How do I start fundraising for my baby’s treatment?
Find out how you can start raising funds for your baby’s treatment with our guidelines and tips.
Do I qualify for funding for my baby’s treatment?
Complete our online financial assessment form for consideration by our trustees.