Success stories

Plagiocephaly and brachycephaly have both been successfully treated with helmets for many years. Discover some treatment success stories below – simply click a child’s name from the list on the left to view their story.

David

David's story

Parent(s): Lisa and Andy

Location: London

David was born on 7 July 2004 at Barnet General Hospital in North London. It was an easy pregnancy and birth; David was checked over by paediatricians before leaving hospital the next day and all seemed well. Although Andy was a little worried by the shape of David's head both parents thought it would sort itself out. Three months later, the right side of his head still looked flat and, after a search on the web indicated it could be plagiocephaly, Lisa went to see the health visitor.

The health visitor seemed slightly concerned and suggested David's parents see their GP. The GP, although seemingly unconcerned, referred them to a paediatrician at Barnet General. The appointment came through for 1 December (a whole wasted six weeks!). Lisa desperately tried to get David an earlier appointment, realising time was of the essence to treat this condition, but was unsuccessful.

When it came, the appointment was deflating: the paediatrician was reluctant to both diagnose David's condition and to refer Lisa and Andy to a specialist. Feeling very low when they returned home, Lisa visited a specialist US helmet manufacturer's site as she was unable to find any UK sites dedicated to the condition. The firm was very helpful, recommending a specialist in Harley Street, one of the world's leading craniofacial surgeons, to rule out craniosynostosis.

The specialist confirmed that David indeed had plagio, and after a few weeks the family were put in touch with a specialist in helmets and were able to make an appointment to see him. After first sending some photos over, they met him on a Monday – and on the following Thursday were making their way to Germany for David's casting and fitting.

When they returned to see the specialist because David had experienced a slight problem with the helmet rubbing, he measured his head at the same time. The misalignment had corrected from 23mm to 18mm in just five days! "To say we are thrilled is an understatement," says Lisa, "it was a long, hard slog to find treatment but I am so glad we didn't give up."

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