Success stories

Plagiocephaly and brachycephaly have both been successfully treated with helmets for many years. Discover some treatment success stories below – simply click a child’s name from the list on the left to view their story.

Keir

Keir's story

Parent(s): Lynda and David

Location: West Lothian, Scotland

Keir was born at 40 weeks on 12 February 2004, following a very normal, straightforward pregnancy and birth.

Early on Lynda noticed that his head was slightly flat on the right-hand side at the back. Initially she didn't speak to anyone about her worries, as she honestly believed she was being unduly concerned. She later mentioned it to the health visitor a couple of times but was given no reassurance or any believable explanation. When Lynda was out with Keir she would use a hat to hide his head so no one would notice it!

When Keir was about 12 weeks old a close relative mentioned his head shape. That simple, innocent comment and subsequent discussion prompted Lynda to take action. By then his head was flatter and had become a parallelogram shape when looked at from above.

After hours of internet research Lynda discovered that the name of Keir's condition was plagiocephaly. She started to reposition him at night and keep him off his flat side during the day (tasks that were very hard and which led to a lot of sleepless nights). She made an appointment with a doctor in June 2004. Armed with information regarding helmet treatment, Lynda hoped to convince the doctor of her intentions.

The doctor listened, asked no questions and reluctantly referred her to a pediatrician at the local hospital – but advised her that they would most likely not recommend any treatment as it would 'grow out on its own'. Six weeks later Lynda was indeed told that. Keir was given an X-ray to check for craniosystosis and issued with a follow-up appointment six months later.

Lynda had already been in touch with a specialist by this point and emailed him photos of Keir. He suggested that the family come directly to his clinic in Frankfurt to save time (Keir was already nearing six months old). Lynda felt very apprehensive about a trip into the 'unknown' with her baby son, but a long telephone conversation with the father of a 'craniograd' alleviated her fears and completely convinced her that this type of treatment was the way forward. The 'wait and see' technique recommended by the NHS was not for Lynda and David.

In August 2004 Keir and Lynda flew to Frankfurt, where Keir was measured and cast for his helmet, which was fitted within two days of their arrival. From day one he showed no sign of discomfort or distress when wearing his helmet, and in fact appeared oblivious to its presence.

On his first check-up Keir's asymmetry had been reduced from 18mm to 10mm, and his parents are delighted that the head shape has continued to improve. They have never once questioned or regretted their decision to obtain the treatment, and whatever the future brings for him one thing they know is that he will never have to worry about the appearance of his head.

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